V.W.Bro. Peter James appealed to the then Provincial Grand Master R.W.Bro. John Prizeman for help in raising the balance needed. A sum around £2,400 was donated by our Province which enabled the Vest to be purchased and it did indeed give Niamh a much improved quality of life although she still had to be hospitalised on several occasions following particularly severe attacks.
V.W.Bro. Peter has now been able to update us on the latest developments. Niamh has been selected to be a participant in the case study for a new and hopefully “wonder drug” called ‘Kaftrio’. Apparently this is most unusual because the general rule is for participants to be at least 12 years of age or over whereas Niamh is now only 8. Her consultant has advised her parents, Justin and Vicky that Niamh can expect a much improved quality of life. But the Vest package we helped fund will continue to benefit sufferers as it will be available to them through Basingstoke and North Hants Hospital facilities.
A second and perhaps unexpected benefit from this donation was that Justin, her father, felt strongly that he would like to join an organisation which had shown such generosity and consideration to someone they didn’t really know. As a direct result he joined Woolmer Forest Craft Lodge and is currently the Junior Deacon and is a great asset to the lodge. When work and family commitments allow there is every hope he will join the Mark Degree.
The message from this story is that it shows how your charitable giving helps so many needy and worthwhile people in their time of real need.